BringChange2Mind

May 20, 2010

What NAMI Walks Mean to Robin, by Robin Walker

I feel like the majority of my motherhood career has been like pushing sand against waves from the ocean, always leaving my spirit feeling washed up and wiped out. I have put in countless years trying to swoop my son under my wing to protect him from himself, his illness and the residual effects it has had on his life, it has been isolating. Many a night I collapsed in my bed with the feelings of defeat and many a morning I felt as if the very thought of getting out of bed was going to break me. It took that brokenness in me to surrender.

I attended Al-Anon for numerous years and worked the 12 steps of the program. I admitted I was powerless over alcohol – that my life had become unmanageable. I came to believe that a Power greater than myself could restore me to sanity and I sought through prayer and meditation to improve my conscious contact with God, praying only for His knowledge of His will for me and the power to carry that out. I surrendered. I experienced two alcoholics and their disease in my life, I was broken and then I surrendered.

One would think that if I could grasp the concept and understanding of AA’s 12 steps as a teenager and young adult that I could apply that to anything in my life as I matured, but somehow I lost that understanding, I lost me. I was so busy taking care of my son. I wanted to give him everything I craved as a child; acceptance, unconditional love, a sense of pride. I started at conception, talking to him inside me throughout my pregnancy. Then when he was born I would tell him daily how special and wanted he was. I have never loved anyone more than Korbin and I know never will.

So when mental illness struck I didn’t understand. I couldn’t grasp how “he didn’t feel like anyone would miss him if he wasn’t here tomorrow”. I couldn’t wrap my head around it! I told him, and showed him, how loved he was. I made that my priority in my mothering. When we hit “rock bottom” three and a half years ago it felt like another defeat and I broke….again. Korbin was going to be okay, he would continue to get treatment and gain coping skills, but this didn’t fix my brokenness. I had to claw my way up and out of the pit I was in. I needed to relearn my steps to recover and even then I didn’t feel complete.

My sense of feeling complete came on the weekend of May 8th, 2010, at the Portland, Maine NAMI walk. I had been busy with my volunteering for BC2M and advocating to end the stigma of mental illness. I was coordinating the BC2M walking teams across the USA and I felt good, empowered, and proud to be a part of such a revolutionary campaign. On May 8th I lead one of our BC2M walking teams in Portland Maine and fully grasped what I was a part of. It was the first time in 12 years that I didn’t feel isolated, it was a day I will never forget. There I was with my son in our BC2M t-shirts not feeling shame because of the illness. We were surrounded by people just like us, we were surrounded by our good friends and family. I saw BC2M shirts on others, some with diagnoses. It was so powerful to watch and experience that live. I listened to Jessie and Calen speak and there were tears in my eyes as I watched them….I felt “normal” for the first time since being a mom, I was hearing the same things I was feeling.

The next day at my sister’s house for dinner, on Mother’s Day, I let the last cat out of the bag. We shared with the last of the family, and even in-laws, about our “secret”. It was freeing and I was finally at peace about mental illness in my family. I feel like the NAMI walk weekend was my first pure and authentic step into advocacy, I was an open book, I surrendered and trusted and now I was not only talking the talk but walking the walk, literally and spiritually. I was doing good works with my advocacy before for sure, but to be transparent….that changes it. I am stronger, wiser and free!

I am grateful for this opportunity to be part of the NAMI walks and to coordinate them. I have met some great advocates and feel blessed by that. I feel blessed by the BC2M community, for because of them I am sharing this joy. To have actually experienced my own walk was life changing and rates in my top three greatest experiences of my life. I encourage everyone to join a BC2M team to feel that sense of oneness. It is refreshing and it has made my soul well.

Robin (bottom center), Korbin (bottom left) and some of the BringChange2Mind family

(Robin Walker is one of our beloved volunteers who has been working night and day to bring BC2M NAMI Walk teams to your city. To find a walk near you please visit our BC2M NAMI Walk site. Here you can join teams in your area, learn how to start your own, or donate! We thank you Robin with all of our hearts!)

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2 Comments »

  1. Thank you so very much for sharing your story!!! Your truly inspiring to so many people.

    Comment by Ruth Messick — May 20, 2010 @ 5:32 pm

  2. Robin, your words ring true. Any parent who has gone through the stages to acceptance and advocacy with a mentally ill child is part of the NC2M and NAMI family. I’m the CT state trainer for NAMI’s Family-to-Family and have taught it over ten times. My son has schizophrenia, and after 7 hospitalizations is currently attending college. Miracles to us, ordinary life to others. By blog is at http://nocasserolesforschiz-author.blogspot.com/. Latest post about BC2M. Hang in there, and never be ashamed

    Comment by Randye Kaye — May 20, 2010 @ 7:17 pm


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